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Our Curse (2013)

Our Curse (2013)

Documentary
Release Date: 2013, July 24
Directors: Tomasz Śliwiński
Countries: Poland
Production: Warszawska Szkoła Filmowa
Cast: Leo Hueckel-Śliwiński

Overview:

The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require a lifetime mechanical ventilation on a ventilator. The film shows the process of taming fear associated with the disease.

Keywords:

parenthood ondine's curse